Eli Thompson came into this world perfectly healthy, but with one distinction, he didn’t have a nose.
The Miracle baby as he is now called was born with an extremely rare malformation known as congenital arhinia believed to affect just 1 in 197 million babies.
This absence in Eli’s facial feature wasn’t discovered at first, until doctors handed him to his mother, Brandi McGlathery, who took one close look at her baby and said shockingly “he does’nt have a nose”.
“I recounted everything I did throughout my pregnancy to figure out if i did something wrong.I realized it was nothing anyone did. I mean, he’s perfect. I’m not going to say I was sad. I was just scared for him because I didn’t think he’d make it.” McGlathery told the press.
Eli, who immediately started breathing normally through his mouth when he was born, was 5 days old when doctors performed a tracheotomy to assist wi th his breathing.
However, because of the procedure, Eli doesn’t make a noise when he cries and his mother must keep a constant eye on him.
The malformation according to the doctors can potentially be life-threatening by causing breathing and feeding problems, but there are known cases of babies making it well into adulthood.
McGlathery told the Press that she has already made contact with parents who have had children born without a nose and other patients who have grown up with the malformation. She also said that she and her family have all been given the right training.
Furthermore, she explained that she and Eli’s father, Troy Thompson, have decided not to do any plastic surgery until he grows up and decides on his own whether to go that route. “Until the day he wants to have a nose, we don’t want to touch him,” she told the newspaper. “We have to take it day by day.” she said.
She also added that she is scared of what other people would say. “I don’t ever want my son to come home and say ‘mommy, somebody made fun of my nose.’ But I also don’t want others to pity him.”
Moreover, since the family now faces years of surgeries and expensive medical costs, family friends set up a GoFundMe page to raise money and more than $5,000 has been raised.